Fibroadenoma and Ehlers-Danlos Syndrome

I can't believe it's been two months since I've blogged. How embarressing.

I have been enjoying the spring weather and spending as much time with our horse as possible.

I've also been doing some medical testing. I have had hip pain for about 5 years and this year I began a more intense search for answers. I discovered that I have a connective tissue disorder called Ehlers-Danlos Syndrome. I think I have the hypermobility type. I had some heart/aorta testing done to rule out the vascular form. My aorta is good. However, while doing a contrast CT scan, they found a mass in my right breast.

Lovely. Just what I wanted - another health issue.


However, after a mamogram and sonogram, they decided to do an aspiration and/or biopsy. The aspiration didn't work, so they did the biopsy. Not fun. Thankfully the lidocaine worked well, but the combination of the doctor's personality and the biopsy itself made me feel a little creeped out.

I have a tumor, but good news - it's benign! The tumor is called a fibroadenoma. I will go back in 6 months for another sonogram, but I'm done with the breast work for now.

That last sentence makes me think of the line from "Return To Me" when Angelo says to Grace, "Don't worry. I just told him that you'd had some work done on your chest." Love that movie.

Anyway, the whole breast mass issue kind of side-lined the Ehlers-Danlos diagnosis and treatment. I need to schedule my physical therapy and see if it helps any. Then I will go back to the rheumatologist and see what the next step is for me.

It appears that my hip pain is caused by my hip not holding together correctly. Thus, when I stand or walk, my hip partially dislocates with each step. That gets rather painful. Advil is my friend. My BFF.

So, besides CT scans, mamograms, biopsies and Advil, I've just been doing the family thing and loving on our horse. It's health issues one after another. Poor Leo injured his eye about 5 weeks ago. He had his own little hospital adventure and medication regime. He's back at the barn now and sporting his lovely new fly mask. Mercy, he's the cutest little dickens.